Five Fast Facts on Rare Disease

Five Fast Facts on Rare Disease

By April Kapu, DNP, APRN, ACNP-BC, FAANP, FCCM, FAAN

February 28 is Rare Disease Day, a global movement that highlights rare diseases and works toward equity in social opportunity and health care, including increased access to diagnoses and therapies for those who are living with a rare disease.

Let’s all do our part to learn about rare diseases! Here’s what you should know:

Rare Disease Day provides an opportunity to advocate for rare diseases as a human rights priority at local and national levels. Increased awareness may create new opportunities to improve the research, diagnosis and treatment of rare diseases. If you’d like to be involved, begin by educating your friends, family and community about rare diseases or participating in one of this year’s local Rare Disease Day events. To identify rare disease early, be sure to schedule annual visits for you and your family with your NP or health care provider.